“Reframing Rare” for Rare Disease Day

Join us in celebrating a Constellation of Rare Stars

Takeda is excited to celebrate Rare Disease Day 2020 with the launch of a "Constellation of Rare Stars." This campaign aims to shine a light on the global impact of rare diseases. We’re proud to support this campaign as part of our strong commitment to helping enable faster diagnosis of rare diseases and better access to rare disease treatments for people living with a rare disease.

February 29 marks Rare Disease Day, celebrated annually to raise awareness of rare diseases and conditions in many countries around the world. Rare Disease Day is always celebrated on the last day of February and this year it lands on the 29, the rarest of days because it falls during a leap year.

Around the world, more than 300 million patients and families are impacted by more than 6,000 different rare diseases.i,ii This year, we’re joining patient organizations across the globe to support the worldwide call to action to “Reframe Rare,” a message that reframes perceptions of what it means to be “rare.”

Beginning on February 17 and throughout the rest of the month, Takeda will honor a "Constellation of Rare Stars," by sharing the stories of 29 patients, families, caregivers, health care professionals and community members who have helped to “Reframe Rare.” These stories will be shared across social media to highlight their individual identity, while also illustrating how light from each of these “Rare Stars” converges to create a collective strength.

Please connect with us on our corporate social media channels – Twitter, LinkedIn and YouTube – to view these inspiring stories from around the world

As Camilla Soenderby, Takeda’s Chief Patient Value & Product Strategy Officer, shares: ‘We have a long heritage working in rare diseases and we are committed to putting patients and those people that support them at the center of the conversation. With this campaign we hope to shine a light on people impacted by rare disease.’

You may have family, friends or co-workers facing a rare disease. Rare diseases affect 1 in every 20 people according to EURORDIS.2 Collectively, people with rare diseases make up the third largest country in the world.

At Takeda, we have 30 years of leadership history in rare diseases and in 2020 plan to continue to expand our efforts to make diagnosis faster and access to treatment easier for people with rare diseases.

Rare is strong. Rare is proud. Rare is many. Together, we can work toward more equitable access to diagnosis, treatment, care and social opportunity for every patient living with a rare disease.

i Nguengang Wakap S, Lambert D M, Olry A, Rodwell C, Gueydan C, Lanneau V, Murphy D, Le Cam Y, Rath A. Estimating cumulative point prevalence of rare diseases: analysis of the Orphanet database. European Journal of Human Genetics, 2019.

ii Rare Disease Day Information Pack. EURORDIS Rare Disease Day Website. http://download2.rarediseaseday.org/2020/infopack-2020.pdf. Accessed on December 9, 2019.